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April 20, 2005

nice new digs...

greg has moved to the step down unit. in fact, he *walked* from the ICU to his new room! it is private, has a nice window view and is actually quite spacious. it even has a private restroom. fancy. :)

i was allowed to accompany greg and his nurse on his after dinner walk. one lap around the unit - 1/24 of a mile - and he did great. we even joked with another patient that greg could easily take him in a race. it would have been quite a sight! they were both piloting to these great walking carts with arm pads and suction tanks and hooks for all the crazy lines and bags and stuff. there are vertical handles with bike grips on them to help steer. greg naturally placed his thumbs on the tops of the posts as though on shooter buttons on a joystick.

solid food is old news now... when i arrived greg had just finished up a steak tips dinner. he'd had eggs and pancakes for breakfast, grill cheez and tuna salad for lunch. he says the food is not too bad. kinda like airplane food, luck of the draw.

yesterday i couldn't get over his complexion, today it was his voice. suddenly his voice seems to be booming! go new lungs! project! project!

greg mentioned that he's been having vivid dreams and flashes since the surgery. he's been inspired to create images of them... on the computer, of course... soon!

they're doing medication alchemy, taking him off the epidural pain meds and putting him onto oxy. they're starting him on prednisolone (is that really how you spell it? should we tell the spammers there's no Z in it?) tomorrow. they've already introduced an anti-rejection med (or maybe two).

i met one of the transplant doctors and a fellow, both young and very nice! the fellow said she was reading along... *waves* the doctor was guardedly enthusiastic about greg's progress. he said there *will* be ups and downs. {his mom told me the other transplant recipient had a set back last night. "it's all so tenuous." she said.}

glad you're all enjoying reading along. don't thank me for writing this, thank GREG for being certain you all stayed up-to-date by asking me to do this (six years ago!)

Posted by emily at April 20, 2005 09:13 PM

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Back before there was such a thing as blogging software, I remember making periodic calls to a friend to update my mother's transplant website when she was getting her new liver, five years ago. Five years and still going strong.

Emily, prednisone is the immunosuppression medication Greg will probably be on in perpetuity. The dose is constantly metered and adjusted to prevent his body from rejecting the new tissue.

I'm so happy for Greg. We can all be grateful to his donor.

Posted by: ethan [TypeKey Profile Page] at April 20, 2005 10:46 PM

Talk about vivid dreams!! Okay.. Greg.. I dreamed about you last night and you were a dancing hologram.

You were a dancing hologram full of bright colors and it was like you were at this giant electronic gathering (*cough* rave *cough*) and you were just dancing like mad!

It was insanely cool. I think that must be a good sign.


Posted by: plaidsheep [TypeKey Profile Page] at April 20, 2005 10:48 PM

What about little presents and such? I've got a little something to help keep him busy in the hospital if he's going to be there a while.

I'd be happy to send it elsewhere if I knew it would get to him.

I'd also rather the real specifics be a surprise.

Posted by: Mad William Flint [TypeKey Profile Page] at April 20, 2005 11:51 PM

Schnooooze, it sounds like you're making wonderful progress! I hope all continues to go smoothly for you. Keep up the hard work and come back to us soon :)


Posted by: kittykat [TypeKey Profile Page] at April 20, 2005 11:57 PM

Yay! I'm so glad Greg is doing so well!

Yes, prednisolone is right -- prednisone (which the spammers like to spell with a z) is an older and slightly different steroid drug than prednisolone. These days prednisolone is often the first choice oral med for lung-related illnesses (including asthma etc.).

Posted by: tyee [TypeKey Profile Page] at April 21, 2005 11:41 AM

Hi Greg! Let us know when you are ready for additional visitors? Maybe I'm not on the list..;-) What kinds of *stuff* do you want to keep you occupied in the hospital? Great News! Thank you, Emily. Less TV, more Geg and Emily blog entertainment. Take care, Erin

Posted by: Jana [TypeKey Profile Page] at April 21, 2005 06:03 PM

This is amazing amazing news! I was looking for information in livejournal land, but then realized when i saw rachel's journal that updates had been posted here all along.

I'm beyond relieved that everything is looking so positive...words can't even express how wonderful this is =*)

Also, I work just over at Harvard Medical School so if either of you need anything, let me know...email me at work:

ece_akturk@hms.harvard.edu I'll email you my work number too :o)

sooooooooooooooo happy for you!!!!!!!!!!!!!!!! =0D


Posted by: daeVa [TypeKey Profile Page] at April 21, 2005 10:42 PM

MMmmm. Steak Tips.

Posted by: Sedai [TypeKey Profile Page] at April 22, 2005 01:23 PM

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