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May 30, 2006

same, but more hopeful

i touched base with eleanor today and they are remaining positive, while trying to stay realistic. greg has been having a rough time but has been holding his own and the family and doctors are happy about that.

the big challenge has been getting his heart into a good sustainable rhythm. they're using cardioversion techniques, including shocking his heart, to get his heart into a normal pattern. the ventricular specialist says that the right side of his heart has enlarged and is causing this to be not as succesful as they had hoped.

he's still on the ECMO to facilitate blood oxygenation, but they're working to reduce his use of it since prolonged use is not ideal. today they did an echocardiogram and reduced some of his meds successfully, but didin't keep the ECMO machine notched down for long since they want to make sure his heart can handle it. even with the ECMO, he's only able to use his lungs to about 30% of their capacity, so they need to get that up.

they are becoming concerned about neurlogical issues, but need to really assess greg when he's not as medicated. he can sometimes follow simple requests, but sometimes is not aware of reality.

he's been stable enough today that they've planned a trip back to CT to take care of some odds and ends and will continue to take shifts at the hospital.

greg's big goal is to get off the ECMO and get his lungs working at a higher capacity so that that they can concentrate on normalizing his heart rhythm without the cardioversion. focus your postive energy and prayers to this goal. the more positive energy people can send the better. do it how ever it works for you... light a candle, say a prayer, take some photos you have of greg and put them somewhere where you can smile at him every day/hour to send your love for him his way.

stay strong greg. you can do it.

Posted by emily at May 30, 2006 06:19 PM

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Comments

to emily - Thank you so much for the updates. Many of us are checking the blog several times a day, hoping for positive news.

to greg - Hang in there buddy. We're really pulling hard for you. You can beat this and come home. Please keep trying! We miss you so much.

Linda

Posted by: kittykat [TypeKey Profile Page] at May 30, 2006 06:59 PM

Greg, man, you gotta pull through this -- we've got a dozen new anime series to talk about!

Posted by: Squiddhartha [TypeKey Profile Page] at May 30, 2006 07:32 PM

Greg - Thinking good things for you over here in Seattle. *hug*

Emily - Though I don't know you - thank you for taking the time to keep us updated on his condition. Is there a place we can send cards/well-wishes again?

Posted by: .zannah. [TypeKey Profile Page] at May 30, 2006 10:26 PM

Greg - I'm sending well wishes from California and hoping that things turn around for you soon. Your blog has been helpful to me as we wait for my step-son's lung transplant.

Emily - Thanks so much for the updates.

Posted by: Maggie [TypeKey Profile Page] at May 30, 2006 10:39 PM

Are we able to visit Greg at Childrens?

Their web site says that advanced planning needs to happen for ICU patients. If we are welcome, who can we contact to arrange a visit?

Thanks,
-selma (selma at case dot edu)

Posted by: whyred [LiveJournal user info] at May 31, 2006 08:00 PM

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