tomorrow they're going to try again what they did on wednesday -- turn down the ECMO and see how his heart looks on the echocardiogram. hopefully it will go better this time.
Eleanor and Dale had the amazing opportunity to watch his doctors do a bronchoscopy on Greg. They verified that the sutures that connect his lung to his heart are still in good shape. They also saw no obvious infection. These are 'crumbs of hopefullness'.
The family is being mindful of the balance of doing things FOR Greg and doing things TO him. It sounds like they have a very supportive staff of Nurses at Children's, too. I am greatful for all they have done for Greg and his family.
I may have the opportunity to visit Children's hospital on Monday afternoon. I will be happy to take your comments to him -- read them to him, if I can. So please feel free to say as much as you need to Greg. If you'd prefer to email your thoughts for him privately, please do so at fontaholic *at* gmail *dot* com.
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please tell him that i love him. that i miss him. and that i *expect* him to get better, dammit. that i NEED him to help me test out my massage chair. i got good feedback at the AIDS walk today, but i desperately need practice!
that i know he's tired, but we need him to keep slogging on. he still hasn't shown me the end of _Bleach_. or taken me somewhere to have sushi for the first time. there is so much stuff we were going to do together this summer, once all this school insanity was over. we were going to get him to a Renaissance Faire, finally. and going for walks, maybe. and watching movies. and me finally being able to stay awake past 11 pm!
but mostly that love and miss stuff.
mostly that.
Posted by: sirhc_warrior
at June 4, 2006 03:18 PM